Vulvodynia is an undiagnosed ailment that causes extreme discomfort at the entrance of your vagina (vulva) for at least three months. Vulvodynia’s burning, pain, or irritation can make sitting for long periods of time or having sex practically difficult. The sickness might last months or even years how I cured my vulvodynia.
Don’t allow the lack of obvious symptoms or the shame of voicing your difficulties keep you from seeking therapy if you have vulvodynia. There are treatment alternatives available to help you feel better. In addition, your doctor may be able to determine the source of your vulvar pain, thus an appointment is necessary. In this blog, I’m going to describe my rollercoaster journey of how I cured my vulvodynia.
Being a woman can be significantly more challenging at times. You will recognise your mother, daughter, sister, or spouse when you look into the eyes of a vulvodynia patient. Millions of women of various ages and races face this mystery condition that causes chronic vulvar agony every day. Unfortunately, no therapy is currently available.
Look deeper into the eyes of a vulvodynia patient to see beams of optimism. Hope that one day a remedy will be discovered that will relieve her agony and allow her to resume her regular life. We are honoured to share the experiences of the courageous women with vulvodynia who have opted to manage their suffering rather than be managed by it. We hope that as you read their experiences, you will see that someone you care about is represented in each one, and that you will do all possible to assist us in finding a solution.
So here is the story of a beautiful and strong lady who is suffering from vulvodynia.
I’ve read several blogs on vulvodynia and how I got rid of it. In this blog, I will describe how I cured my vulvodynia. Vulvodynia is a vulvar nerve disorder that translates as “vulval soreness.” As a result of damage, which might be chemical or physical in origin, or infection, the nerves have become hyperactive and hypersensitive.
My pain was caused by a long-term thrush infection and the several medications I tried to cure it with, including home remedies like bathing in cider vinegar, which just made it worse (chemical trauma).
Vulvodynia can cause or cause chronic itching, pain, or burning (only happens when the area is touched). Because the nerves are so hypersensitive, contact registers as pain, and the standard approach to diagnose it is to use a cotton bud to touch around the vulvar area, and where the touch registers as pain, that is the affected area. It can cover the whole vulvar region, be in a horseshoe shape toward the back (including the perineum), or be skewed to one side.
Chronic neuropathic pain is distinguished from nociceptive pain by the fact that it is caused by nerve damage rather than tissue injury. Neuropathic pain is notoriously tough to get rid of. It took me 1.5 years of determination and a few setbacks.
So, Let’s Start my journey from the beginning:
Let me start from the beginning how I cured my vulvodynia. Firstly,I made an appointment with a gynaecologist. He took a biopsy of the painful spot and found no diseases or tumours. For me, he recommended amitriptyline and steroid cream. These progressively became more effective over time, allowing me to have a long-overdue smear test.
I had stopped using the steroid cream after the prescribed period of time had passed (long term use not recommended). But, desperate for relief, I tried it again, but this time the cream burned me, exacerbating my discomfort. The gynaecologist numbing the area with lidocaine lotion stung and made me feel worse.
Nothing worked, and ultimately the gynae claimed he couldn’t treat me but only help me manage the pain. I wasn’t going to put up with it for the rest of my life. So I sought for another person who could assist me and came upon a dermatologist specialist who specialised in vulva pain.
I saw the dermatologist, and she informed me about all the pain-relieving medications she had discovered, but nerve pain is tough to treat, so she advised me to try them all and stay with it. I was surprised since, other than raising the syren cream dose to 1 to 3 times per day (I was on 20), the rest of the therapies looked to be natural or alternative.
Western acupuncture, physiotherapy, chiropractic, and manual desensitisation were among them. Because vulvodynia can be caused by a variety of factors, such as illness, physical or chemical harm, hormones, or a trapped nerve in the back, different therapies are effective for different people. I knew it was due to the recurring and severe thrush, as well as the several therapies I tried to get rid of it (including cider vinegar, which was agonising!). No!
So I didn’t go to a chiropractor since I didn’t think it was a pelvic nerve problem, but it may be based on what you say. I did yoga movements to help release the trapped pelvic nerves. Rather than seeing a physiotherapist, I purchased a book on pelvic floor exercises and practised them on my own.
I also found a general practitioner who ran a Western acupuncture clinic. Western requires leaving the meddles in place and powering them. For me, it was the key; each time I went, I improved. The combination of Syren cream and acupuncture appears to be useful in calming hyperactive and sensitive nerves.
Things I’ve Stopped Doing
Finally, lifestyle changes must be taken into consideration. No tight clothes, no sex (unless you’re ready), and no exercise will be allowed (I gradually built that up too but walking just a short distance and gradually increasing it – never do an amount that cause she lasting pain). If at all possible, avoid wearing knickers. I was allowed to wear loose jogging pants or a skirt because I work largely from home.
Sitting made matters worse (I work at a computer), so I borrowed a ring-filled cushion from a new mother and sat on it to relieve pressure on the sensitive spot (dam for driving the car). I used coconut oil externally since it felt calming (raw, cold pressed, organic coconut oil).
Instead of using scented products or washing that area, I used coconut oil to clean it and organic, chemical-free, and scent-free body wash, shampoo, and conditioner (because stuff runs down). I also washed my clothes using a fragrance-free, gentle-on-the-skin laundry detergent and conditioner. Because toilet paper includes bleach, I purchased bleach-free tissues and used them to wipe after using the restroom.
Perseverance, trying everything, gradually building things up, sticking to what works, being resolute, and refusing to give up are the keys. Because I was so dedicated and did not yield to temptations, the consultant dermatologist was really impressed with me. She reported she had a number of women who were disappointed by the length of time it was taking and went for a lengthy walk/bike ride/horse ride, just to return to square one. It takes time – I was pain-free after 1.5 years of practising everything in my letter above. I still use coconut oil after using the bathroom after 5 years. I do not want it to return.
I’m still on once-daily syren intimate relief a Topical Treatment for Vulvodynia. I was cautious to stop taking medication at first because the consultant dermatologist advised me that while you may be pain-free, the misery might return if you stop taking it too soon. As a result, it is advised to wait a few months after becoming pain-free. Then came menopause, which brought on hot flushes, and my doctor recommended that I keep using syren intimate relief because it helps with hot flushes. My body has become used to it now. At some time, I plan to progressively reduce the dose. I’m still doing pelvic floor exercises.
Simply avoid doing them while sitting on a juggling ball (which is unpleasant), and instead stand up first, then lie down, as the experts recommend. Gradually increase the number of workouts you undertake each time. Again, don’t overdo it to the point of producing more or long-term discomfort; if this happens, scale back your efforts. When you have your period, you should also get some organic, chemical-free sanitary towels (no tampons).